dEBra is an international organization which provides information on programs and services, research, parental support, nursing and insurance advice.
EB Research Partnership is focused on finding a cure for Epidermolysis Bullosa. It is a fundraising organization and has the ability to focus on the most promising research areas. They are working to treat and cure EB as quickly and efficiently as possible. They fulfill their mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
Many teachers and other school staff are intimidated about addressing the needs of children with EB. After giving talks and answering questions at several schools, the EB Team at Colorado Children's Hospital decided that there is a need world wide to educate schools about EB.
They developed this two-part DVD which is available through Debra of America. It is a video guide for making the school experience supportive and academically challenging for students with EB.
This video was made in collaboration with Children's Hospital Colorado to educate about EB and help raise awareness and funds.
EB Winter Adventure Camp Video
"The Worst Disease you've never heard of" Video
Copyright © 2021 Butterfly Children Fund - All Rights Reserved.