• Home
  • About
  • Education and Awareness
  • The Faces of EB
  • Events
  • Contact
  • Donate
  • More
    • Home
    • About
    • Education and Awareness
    • The Faces of EB
    • Events
    • Contact
    • Donate
  • Home
  • About
  • Education and Awareness
  • The Faces of EB
  • Events
  • Contact
  • Donate

Education and Awareness

EB Awareness: debra.org

DVD: What is EB? And Your Welcoming Classroom

EB Awareness: ebresearch.org

dEBra is an international organization which provides information on programs and services, research, parental support, nursing and insurance advice. 

EB Awareness: ebresearch.org

DVD: What is EB? And Your Welcoming Classroom

EB Awareness: ebresearch.org

EB Research Partnership is focused on finding a cure for Epidermolysis Bullosa. It is a fundraising organization and has the ability to focus on the most promising research areas.  They are working to treat and cure EB as quickly and efficiently as possible. They fulfill their mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.  

DVD: What is EB? And Your Welcoming Classroom

DVD: What is EB? And Your Welcoming Classroom

DVD: What is EB? And Your Welcoming Classroom

 

Many teachers and other school staff are intimidated about addressing the needs of children with EB. After giving talks and answering questions at several schools, the EB Team at Colorado Children's Hospital decided that there is a need world wide to educate schools about EB. 

They developed this two-part DVD which  is available through Debra of America. It is a video guide for making the school experience supportive and academically challenging for students with EB.

EB - You Can Help YouTube Video

 This video was made in collaboration with Children's Hospital Colorado to educate about EB and help raise awareness and funds. 

CAMP SPIRIT Colorado

EB Winter Adventure Camp Video

Epidermolysis Bullosa (EB)

"The Worst Disease you've never heard of" Video

Copyright © 2022 Butterfly Children Fund - All Rights Reserved.

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept